Monday, April 11, 2011

Autism Walk

Yesterday We bundled up our 3 little ones , packed a diaper bag with snacks, diapers, extra clothes, and drinks and loaded them in the van to head  up to Rhienbeck NY to participate in the 10th annual Autism Walk and Expo which ran from 9-1pm. It raises money for Autism in the Hudson Valley and there are various agencies and sponsors  there who you can get information from and  ask brief questions. The day was breezy and cold but still clear and a good day for our walk to happen.

There was also children activities such as a llama , Elmo, bouncy objects, and child sized drum sets where the kids could go and bang away to their hearts content! Music was provided for walkers to listen to as they made their way around the dirt track that consisted of the walk for autism. There were teams , individuals, families, business you name it walking carrying signs and showing love and support. It was very touching to see all that came out to raise money and awareness for this cause.

As you made your way around the track yellow sign were posted that would inform you about facts, information and anything doing with Autism. We did the track once time as one of us was holding the hand of each twin and the other was holding William's hand and the diaper bag. After we were done we went over the where there was a karate demonstration taking place by children who were breaking boards and jumping through flaming hoops, very exciting!!

The Children played with a sand table,climbed up steep inflatable stairs and  went down the  inflatable slide, bounced up and down in a inflatable bouncy house, saw elmo and got stickers, and even saw a Llama!

I would have to say the hit of the day was the small child sized drum sets that were set up for the kids that were free for them to play with and make as much noise as they wanted to which they thoroughly enjoyed. No body shhing them or telling them not to do anything just free play and fun which produced a lot of giggling among all the children as the parents watched and told them how well they played and how wonderful it sounded all the while with small smiles upon their faces. 

One of the great things about this event is the way I feel at it and it's if William is having a hard time or has a melt down there no one is going to judge , give condescending  looks, or think he is just a "bad" kid. They know he is Autistic and is just having a bad moment and that he is not a bad child! What a relief to be able to attend a event and fit in and not be on edge that something is going to happen. If something happens so what , everyone else has been there at some point too! You are among your peers there who are fellow parents, loved ones, and professionals who live ,work or love an Autistic somebody. The stories of hope and support freely shared among strangers is wonderful and inspiring and really makes a happiness fill you inside. 

After the kids were getting restless and us parents had enough we ushered them into the van once again with the promise of french fries and other goodies and off we went back to our home. Silence rang out through the car as 3 worn out little children dozed in their car seats and my husband and I enjoyed the silence on our journey home. We broke that peaceful quite only once to look at each other with tired eyes and say "I love you and I had a nice day with you and the kids today" Then once again we rode home but with a small smile of satisfaction on our faces knowing we did something good for not only our children but for our family as well that day.



Friday, April 8, 2011

How Does Autism Effect Parents

So much is discussed about how Autism effects the child and the various signs but I think sometimes the parents are left out of what happens to them after the child is diagnosed so I will share with you how it effected me.



When we found out about William being diagnosed I felt like my heart was ripped out of my chest and I cried , I raged, I asked why me? What did I do that my child had to suffer with something there was no cure for? Am I a bad mother? After this there was some time for a while it was sinking into my brain and settling into my soul that I had an autistic child and this was my, my husband's and my families life now. 

I then just stopped caring , caring about me , how clean my house was, if the laundry got done, and other little chores that "good" mom's do all day while their husbands are at work. Then I went into the opposite direction and was "robot" mom and went through the motions of doing wash , mopping floors , cooking dinner and just taking care of all these little things still not caring about Dana.

Before I knew it time had went by and several numbers on the scale as well and it soon came upon me that I no longer fit into anything in my closet and I had gained weight and no longer looked or felt like myself anymore and that I had been having a huge pity party for myself. Why shouldn't I? I was the mother of an Autistic child and I was suffering too wasn't I?

It was time to stop the pity party and get me back and start caring about myself again as even though I had done all the right things by my family and William I wasn't doing the right things by myself and I had gotten into a depression and uncaring cycle of abuse upon myself. Crying for reasons unknown to anyone, feeling tired all the time, wearing sweat pants and large sweat shirts everyday all day long. These were not the acts of an emotionally stable person so I did what most people I went to therapy. 
Therapy is good at times you can express yourself , talk to a a neutral third party, and feel better after your 30-45 minutes are over. You walk out refreshed and feeling better like a weight is lifted off your chest , there is a spring back in your step and sometimes you can even catch yourself whistling a tune. Until you walk back into the nightmare that is your life and then it is gone as fast as it came to you.

So , back at square one I gave up therapy as it helped until I got home and William was throwing a fit, the twins were crying, the teens needed dinner , and the husband wanted to know whatever.I floated along for a while again until one day my "fat" pants were getting tight on me, and I got angry! Angry at myself, at Autism for coming into our lives , and at whatever made me this fat . Right then and there I vowed to lose this Autism blubber and get back to me again. 

I am happy to report at this posting I have lost 22lbs and am 10lbs away from where I was before Autism barged down my down, sat on my couch , put its feet up and decided to stay awhile.

This is how Autism effected me and me alone and everyone if different and it effects everyone when they find out  their child is Autistic in different ways. Maybe people will see this as weak,maybe some will see it as stupid or self pitying. I see it as a strong women who was lost for a while but is strong enough to see it and fought to come back.

Friday, April 1, 2011

Autism Awareness Month is April

April is Autism Awareness month
1 in every 110 are autistic
60 new cases are found every day
It is more common in boys then girls

this is William , he is autistic , he is a loving little boy and he is cherrished by his family.
http://www.youtube.com/watch?v=RTA5ov3YjbM&feature=related